Skip to main content

FSCDR 2025 Annual Main banner

Icon Legend

This session is not in your schedule.

This session is in your schedule. Click again to remove it.

Presentation Icons

Livestream

On Demand

Meal

Ticketed Event

Session: Abstract Breakout Session I Health Services / Outcomes Research

‘Someone to Advocate for Me’: A Community-Defined Framework for Successful Transition to Adult Sickle Cell Care

Sunday, June 8, 2025

3:00 PM - 3:15 PM ET

Location: 303B

Presenting Author(s)

Melanie M. Aviles, BS

Research Coordinator
NYC Health + Hospitals/Jacobi Medical Center
Bronx, New York, United States

Slides

Co-Author(s)

LD

Lucian Dobroszycki, BA

Research Volunteer
NYC Health + Hospitals/Jacobi Medical Center
Bronx, New York, United States
TD

Toni DeNicola, RN, NP

Research Coordinator
NYC Health + Hospitals/Jacobi, New York, United States
RD

Raven Dwyer, MPH

Associate Director of Research
NYC Health + Hospitals/Jacobi Medical Center
Bronx, New York, United States
Kenneth Rivlin, MD, PhD

Chief, Division of Hematology/Oncology
New York Health and Hospitals/Jacobi
Albert Einstein College of Medicine
Bronx, New York, United States
NS

NYC Health + Hospitals Sickle Cell Disease Community Advisory Board, n/a

Sickle Cell Disease Community Advisory Board
NYC Health + Hospitals/Jacobi Medical Center
Bronx, New York, United States

Learning Objectives:

Analyze the role of advocacy in defining a successful transition from pediatric to adult care for individuals with sickle cell disease.
Evaluate the challenges and barriers to self-advocacy during the transition process and its impact on patient care.
Implications for incorporating community-driven perspectives on advocacy into transition planning for sickle cell disease care.