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Session: Abstract Breakout Session I Health Services / Outcomes Research

Bridging the Gap Between Research and Policy: Sustaining Improved Hydroxyurea Use in Sickle Cell Disease Beyond Grant Funding

Sunday, June 8, 2025

2:45 PM - 3:00 PM ET

Location: 303B

Presenting Author(s)

Kenneth Rivlin, MD, PhD

Chief, Division of Hematology/Oncology
New York Health and Hospitals/Jacobi
Albert Einstein College of Medicine
Bronx, New York, United States

Slides

Co-Author(s)

CA

Candace Alphonso, MPH

Grant Coordinator
NYC Health + Hospitals
Queens, New York, United States
UP

Urvi Patel, MPH

Research Coordinator
NYC Health + Hospitals/ Queens
Bronx, New Mexico, United States
SM

Salma Muhyedeen, CHW

Research Assistant
Candice's Sickle Cell Fund
Bronx, New York, United States
BB

Bruce Bernstein, n/a

Sr. Associate Director, Business Development
NYC Health + Hospitals/ Queens, New York, United States
TD

Toni DeNicola, RN, NP

Research Coordinator
NYC Health + Hospitals/Jacobi, New York, United States
MS

Marcy Stein-Albert, MD

Director, Pediatrics
NYC Health + Hospitals/Queens
Queens, New York, United States
JP

Jean-Bernard Poulard, MD, MBA

Priincipal Investigator
NYC Health + Hospitals/Queens, New York, United States

Learning Objectives:

Describe key barriers to hydroxyurea utilization in children with sickle cell disease at the provider, patient, and system levels.
Identify evidence-based interventions—including CHW integration, provider education, clinical workflows, and financial incentives—that increase hydroxyurea use and adherence.
Evaluate policy and healthcare system changes necessary to sustain improvements in hydroxyurea uptake and reduce disparities in sickle cell disease care.